Supporting Patients on the Clinical Trial Journey

ENACT is designed to walk you through clinical trials from the time you start thinking about participating in a trial to after the trial is complete.

“I’m participating in a clinical trial so that it may benefit my kids and relatives in the future.”
— Gigi Imerson, Clinical Trial Participant

ENACT was created for YOU.

Many patients wonder if a clinical trial is right for them but are unclear about how to find the right clinical trial, what is involved, what questions to ask, and what they need to do.

ENACT is designed to walk you through clinical trials from the time you start thinking about participating in a trial to after the trial is complete.

A healthcare professional talking with a patient

The Patient Journey

The ENACT roadmap is here to help you better understand and navigate the process.

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Explore Resources

ENACT resources are here to help. We answer frequently asked questions and guide you each step of the way.

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Participant Stories

Listen as real clinical trial participants share their stories so you can hear a patient perspective on clinical trial processes.

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Meet Marylou

A Clinical Trial Participant

In this video, Marylou Magrino shares her experiences with being in a clinical trial and the impact it has had on her life and the lives of others.

Clinical Trial Resources

Cardiomyopathy GoToGuide

The Cardiomyopathy GoToGuide is a comprehensive resource for patients, family, and caregivers living with cardiomyopathy.

Clinical Trials Discussion Guide

The Clinical Trials Discussion Guide helps with everything you need to know about participating in a clinical trial.

Gene Therapy in Cardiovascular Clinical Trials Infographic

More information on AAV Gene Therapy.

Resource availability